| 标题： | 中国听神经病临床实践指南（2022版） |
| title： | Chinese Clinical Practice Guideline of Auditory Neuropathy (Version 2022) |
| 版本： | 原创版 |
| version： | Original |
| 分类： | 标准指南 |
| classification： | Standard guideline |
| 领域： | 综合 |
| field： | Comprehensive guideline |
| 国家和地区： | 中国 |
| Country and region： | China |
| 指南使用者： | 耳鼻喉科医生、听力师及从事相关康复、遗传咨询工作人员 |
| Guide users： | Clinician in Otolaryngology, audiologists and staff engaged in related rehabilitation and genetic counseling |
| 证据分级方法： | 无 |
| Evidence grading method： | NA |
| 制定单位： | 中国听神经病临床诊断与干预多中心研究协作组、中华耳鼻咽喉头颈外科杂志编辑委员会、中华医学会耳鼻咽喉头颈外科分会耳科学组、国际耳内科医师协会中国分会、中国医疗保健国际交流促进会耳内科学分会 |
| Formulating unit： | the Chinese Multi-center Research Collaborative Group on Clinical Diagnosis and Intervention of Auditory Neuropathy, the Editorial Board of the Chinese Journal of Otolaryngology Head and Neck Surgery, the Otology Group of the Chinese Medical Association Otolaryngology Head and Neck Surgery Branch, the Chinese Branch of the International Association of Physicians in Audiology, and the International Exchange of Chinese Healthcare, the Otology Branch of the China International Exchange and Promotive Association for Medical and Health Care |
| 注册时间： | 2022-01-10 |
| Registration time： | |
| 注册编号： | IPGRP-2022CN022 |
| Registration number： | |
| 指南制订的目的： | 20多年来，国内外学者们对听神经病的认识经历了从临床特征分析，听力学诊断与鉴别诊断、电生理 学检测及心理声学测试，遗传代谢机制研究到渐入精准的评估与处理的新阶段。在发现听神经病之前，国内外已建立了针对新生儿感音神经性听力损失的早期评估与管理方法，但其不能完全满足婴幼儿听神经病诊断和鉴别的特定需要，因此针对婴幼儿听神经病的评估与管理指南不断出现并逐渐完善[3-6]。但亦可看出，已有的国际指南主要针对的是婴幼儿听神经病的评估与管理，尚无针对青少年和成人听神经病的评估、诊断、干预、管理指南。我国学者早在2007年的首届“全国听神经病专家论坛”发布了听神经病临床诊治的讨论草案[7]，但时至今日，国内外尚无针对听神经病的发病机制、临床分型、医学诊断、干预与处理的医学诊治的综合实践指南，尤其缺乏儿童（4-12岁）、青少年和成年听神经病的评估与干预指南，缺乏结合病因学（基因，免疫，病毒等），影像学，定位分型，自然病程、干预效果分析的实践指南。更为重要的是，由于各个国家的国情和患者特征不同，每个国家制定的指南主要是依据本国的医疗实践，虽可借鉴，但不能照搬和复制，因此，有必要建立与我国医疗实际相符合的临床实践指南。 在结合国内外听神经病研究进展和中国临床实践成果的基础上，自2016年至2020年，由解放军总医院主办的“听神经病进展与指南国际高峰论坛”，邀请了国内外200余名专家学者讨论，并牵头组织开展制订适合于中国医疗条件和特点的《中国听神经病临床实践指南》，即本指南。本指南由旨在疾病诊断的一致性、操作流程的规范性、疾病亚型分类、病变部位分类、遗传学精准诊断、个性化干预和自然病程随访等方面上体现我国研究的特色与贡献，建立和完善符合我国医疗条件的中国听神经病临床实践指南。 |
| Purpose of the guideline： | The understanding of auditory neuropathy by domestic and foreign scholars has gone through a new stage of clinical feature analysis, audiological diagnosis and differential diagnosis, electrophysiological testing and psychoacoustic testing, genetic and metabolic mechanism research, and gradually entering a new stage of accurate evaluation and treatment for more than 20 years. Before the discovery of auditory neuropathy, early assessment and management methods for neonatal sensorineural hearing loss have been established at home and abroad, but they cannot fully meet the specific needs of the diagnosis and identification of infant auditory neuropathy. Evaluation and management guidelines continue to emerge and gradually improve. However, it can also be seen that the existing international guidelines are mainly aimed at the assessment and management of auditory neuropathy in infants and young children, and there are no guidelines for the assessment, diagnosis, intervention and management of auditory neuropathy in adolescents and adults. As early as in 2007, Chinese scholars released a draft discussion on the clinical diagnosis and treatment of auditory neuropathy at the first "National Auditorial Neuropathy Expert Forum". Comprehensive practice guidelines for the treatment of medical diagnosis and treatment, especially the lack of evaluation and intervention guidelines for children (4-12 years old), adolescents and adults with auditory neuropathy, lack of combination etiology (gene, immune, virus, etc.), imaging, localization and classification, A practical guide to the analysis of natural history and intervention effects. More importantly, due to the different national conditions and patient characteristics of each country, the guidelines formulated by each country are mainly based on their own medical practices. Although they can be used for reference, they cannot be copied or copied. Compliance with clinical practice guidelines. Based on the research progress of auditory neuropathy at home and abroad and the results of clinical practice in China, the "International Summit Forum on the Progress and Guidelines of Auditory Neuropathy" was hosted by Chinese PLA General Hospital, inviting more than 200 experts and scholars from 2016 to 2020, and formulating the "Chinese Auditory Neuropathy Clinical Practice Guidelines" suitable for Chinese medical conditions and characteristics. This guideline aims to reflect the research in our country in the aspects of consistency of disease diagnosis, standardization of operating procedures, classification of disease subtypes, classification of lesions, accurate genetic diagnosis, individualized intervention and natural history follow-up. To establish and improve the clinical practice guidelines for Chinese auditory neuropathy in line with our country's medical conditions. |
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